Sexuality Conferences and the Myths of Accessibility

photo of a white male in a business suit leaving a wheelchair and walking up a set of stairs; blue text - "Sexuality Conferences and the Myths of Accessibility"; black text - "Avery Heimann, Chronic Sex"

I’ve been having an intense amount of anxiety writing this guest post for Chronic Sex. Partly because I think it’s impossible for to keep the flow of topics coherent… partly because, while I idealize having a more constructive and tangible approach to accessibility, I also find myself grappling with useful application versus itemized fetishization of accessibility. The anxiety also stems from feeling overwhelmed by what is going on in social media lately regarding accountability, call-outs, call-ins, privilege, and marginalization. I started writing this post at work last week during a double shift after just meeting my newborn nibling. I was optimistic, energized, and ready to write. I want to continue this post from the position I am in now: confused, jaded, anxious, and exhausted…

The following exercise requires flexible and consensual execution. Take what you want from it, throw away what you don’t:

Exist for a moment. Try to be present in your body if you can. If you can’t, try to take some time and think about what is keeping you from being present. If this amplifies stressors to an unmanageable level, I take responsibility and am prepared to be called-out for that at some point. I’m writing this post to a rhetorical “everyone and no one” through a medium which doesn’t allow for immediate communication. It puts me in a position of power I am not comfortable with, yet I continue to press on with the risks of making harmful mistakes. I am ready to learn, and it is sometimes unfair that a stationary “one-sided” blog post is how that process catalyzes.

If you are not present in your body, if you do not want to be present in this post, try to find an awareness of what that feels like, how it is named, how it manifests through sensation. If you have become so unbearably frustrated with this exercise and my ramblings that you’re ready to click off this post altogether, confront that very real possibility. I believe it can be infuriatingly difficult to pay attention to ourselves at varying levels, especially in unknown environments.

Continue reading “Sexuality Conferences and the Myths of Accessibility”

Heading to ACR

This afternoon, I board the first of two flights on my way to San Diego for the American College of Rheumatology annual meeting!

I’m incredibly excited to be attending this year. It’ll be my first year there. I’m unsure what exactly to expect. I’ll be covering sessions I attend here, when relevant. Sadly, there is no sex session this year – go figure!

If you’re in San Diego, hit me up! I leave Wednesday morning but would love to see you in the meantime.

[photo of a person with short dark hair; overlays of the Woodhull graphic and a white text "#SFS17" | pink overlay with white text reads "disability, illness, & pain don't remove sexuality from our lives. Sexuality doesn't depend on ABILITY -Kirsten Schultz"]

Off to Woodhull

I’m heading to Woodhull’s Sexual Freedom Summit for the next few days.

Hedonish and I will be presenting Saturday morning on how pain disorders can affect our sex lives – as well as how to counter that.

I’m incredibly grateful to the SFS17 sponsors as well as The Woodhull Foundation for having us.

Make sure to follow along on our Instagram, Twitter, and the #SFS17 hashtag across social media. If you’re attending, too, make sure to say hi!

Off to HealtheVoices 2017

I’m heading to Chicago for the weekend for HealtheVoices 2017!

Chicago is one of my favorite places, so I’m excited to spend some time there with some of my favorite health activists in the entire world. It will also be great to see many of my Joint Decisions friends for the first time since our October summit.

Since I’m at the end of my master’s capstone writing, I may not get a recap up as quickly as I did last year. Still, I’m excited to be able to share things I learn with everyone else via the interwebs.

PS: Janssen is paying my travel expenses for this conference. All thoughts and opinions expressed here or on social media are my own and do not reflect the thoughts or opinions of Janssen or Johnson and Johnson. 

Dreaming of California

chronic-sex

Hi, lovebugs!

I’m excited to share that you can tune into two places coming up to hear about the upcoming For Grace conference that I am a part of – and to hear me talk a little more about my role in it!

On Sunday, September 11, at 4 pm Pacific Time, you can tune into KPFK to hear me and others on Access Unlimited. If you missed it, please check out their archives.

You can also tune into Change Is In the Air with Nicole Smith on 740 AM (KBRITE) at 8 PM Pacific Time on Monday, September 12. (I’m pretty sure that’s the date, though it may be the following Monday).

If you want to check out my presentation on Chronic Sex at Medicine X, sign up to live-stream it here. We haven’t been given a schedule for the day, yet, but I’m speaking on Thursday, September 15, at the Health Care Innovation (HCI) event.

You can also live-stream For Grace.

With all that said… Things will be a little quiet around here until the end of September between attending Medicine X at Stanford and For Grace in Los Angeles a week later. Because of the busy conference month and traveling, we won’t be having chat until the first week of October.

The bonus of putting chat off a little bit is that I have several episodes of the podcast recorded and just waiting for me to mix and edit, so I’ll be able to dedicate more time to that. A giveaway is also coming soon – stay tuned for details!

Feel free to utilize the #chronicsex tag on Twitter to share any meaningful stories or information you’d like others to see or tag us on whatever social media you use if you’d like things shared on a wider basis. Our social media pages will still be actively posting information, providing support, and sharing about traveling, though, so don’t be a stranger!

Not sure where to find us?
Facebook
Twitter
Instagram
Pinterest
Medium

You can also always reach me at kirsten@chronicsex.org, too.

PS we now have a Zazzle store! Please note that you have to set the content filter to moderate because, shocker, the word ‘sex’ can’t be a G-rated term. Whoops!

 

Milwaukee SHARE

Last week, I was honored to be able to attend some of the Milwaukee SHARE sessions. If you’re unfamiliar with SHARE, it stands for Sexual Health and Relationship Education. It is run by Tool Shed Toys, one of the most progressive and educational sex shops in the nation.

On Monday, April 4, I was able to attend their Health Care Providers Day.

The first session was “Talking About Senior Sex with Joan Price.” Joan is AMAZING.

One of the biggest takeaways from her session that I had was how sexual dysfunction can be related to non-sexual medical issues such as heart disease. Your physician should give you a full body exam when you present with sexual dysfunction symptoms instead of telling you to just use more lube.

Lube is always great, though.

Joan suggested sharing with your physician the following if you present with a sexual issue: “My sexuality is important to me.” Discuss how these issues affect your quality of life.

She also suggested creating an Advanced Sexual Directive. Many nursing homes and other assisted-living facilities have rules against sex and sexuality. Making sure that you have such a directive in place can help you to enjoy life should you need to live in such a place.

The second session Making Your Practice Transgender Friendly with Ashley Altadonna and Hudson P. of Tool Shed Toys.

This was a very useful session. I learned a lot about my own sexuality. Gender expression, for instance, was not a term I had heard of. It simply means the outward appearance a person chooses to give off and how that may tie into their gender identity.

I also learned some heavy statistics – 41% of transgender people are likely to have suicidality. Transgender patients are outed at doctor appointments, denied treatments, and treated horribly by physicians who don’t agree with their patients’ lives.

So much for the Hippocratic oath.

The third session Compassionate Care for Kinky People with Sophia Chase. Sophia is a dominatrix and rents out dungeon room for safe play. She’s also a sex educator and super cool human being.

I would like to be her best friend honestly.

She discussed the need for physicians to understand the difference between BDSM (bondage and discipline, dominance and submission, sadism and masochism) and abuse.

Sophia has lupus and also discussed how many people with chronic illness or pain get involved in BDSM at some level. There is an attractiveness to controlling some pain we receive.

I definitely see it after that session.

There are great communication and negotiation techniques utilized in BDSM that I think we can all learn from as well. More to come on that in the next few months.

The fourth session Ready, Sexy, Able: Sex and Disability with Robin Mandell (whom I credited in our chat questions last week as Robin Marshall – oops!).

We are not that far removed from asylums and other demeaning institutions. Some of the worst ones only closed in the mid-1990s.

Many of the group homes we have today aren’t great either.

Women with disabilities especially have low sexual/self-esteem and are more likely to be abused.

I really enjoyed some of the definitions Robin included in her presentation. The one I enjoyed the most was the definition of intimacy: caring, sharing, loving, vulnerability, trust, self-disclosure, risk-taking.

She also shared the following resources (which will go up on our resources page shortly):

  • Through the Looking Glass
  • Rocking the Cradle
  • Disabled Parenting Project
  • How I Became A Human Being
  • The Sexual Respect Toolkit
  • Sexuality & Access Project

To check out more information from the week-long set of sessions, visit Milwaukee SHARE’s Twitter page or their hashtags from the events:

  • #sharekickoff
  • #sharehcp
  • #sharesexgeek
  • #sharesrsex
  • #shareupdate
  • #sharesecrets
  • #shareplay
  • #sharethelove
  • #shareporn