About

Chronic Sex is a safe place to discuss and ruminate on self-love, self-care, relationships, sex, and sexuality with chronic illness.

This movement was started by Kirsten Schultz of Not Standing Still’s Disease as a way to bring to light Quality of Life issues affecting those of us living with chronic illnesses.

kirsten stands with her arm up - on her hand in sharpie are written the words 'weird, queer, fat' - this photo was titled 'i am not my identity'
Kirsten | genderqueer pansexual | pronouns: she/her

Kirsten has been collecting chronic illnesses since the ripe age of five. In 1993, she was diagnosed with Asthma and had her first flare up of Systemic Juvenile Idiopathic Arthritis. Since that time, she has added on fun diagnoses including Fibromyalgia, Depression, Anxiety, and Post-Traumatic Stress Disorder. Kirsten’s first blog was How to Ace Life but she started NSSD in 2009. She works with a number of organizations including the Arthritis FoundationCreaky Joints, and Joint Decisions.

An avid volunteer, she has been interested in sexuality and sexual education since high school (which is longer ago than she’d care to admit). After attending a presentation by Lucky Tomaszek of Tool Shed Toys, Kirsten realized how little was known or talked about with regards to sexuality and illness or disability. She also knew from her own journey with relationships and illness, though, that illness and disability also affect these things by affecting our relationships with ourselves and others.

Chronic Sex was born shortly thereafter.

Mariah sits in front of a pretty nature scene complete with trees and some water in the background
Mariah | pronouns: she/her

Kirsten is lucky to have the support and friendship of fellow blogger and activist, Mariah Leach.

Mariah was diagnosed with Hashimoto’s thyroiditis at the age of 5 and rheumatoid arthritis at 25. She started her blog, From This Point. Forward. in 2008. Today, she works to empower patients and raise awareness about arthritis and other chronic illnesses. After learning firsthand the challenges of facing pregnancy and motherhood with RA, Mariah has become particularly passionate about supporting women with chronic illnesses who are or want to become mothers.

She runs a Facebook group called Mamas Facing Forward to provide support and community for moms (and moms-to-be!) who are living with chronic illnesses. She is also a part of Joint Decisions.

What Does Chronic Sex Do?

We have a chat on Twitter Thursday nights at 7 pm Eastern (New York City) Time. We also have a strong social media presence. Our podcast can be found on iTunes and SoundCloud.

If you’re looking to write a piece, have information featured on the website, or want to talk about our podcast, please send an email to kirsten -at- chronicsex-dot- org.

News & Articles About Chronic Sex:

Where to Catch Us Elsewhere on the Internetz:

If you’d like to work with us, please check out Kirsten’s media kit.