About

Chronic Sex is a safe place to discuss and ruminate on self-love, self-care, relationships, sex, and sexuality with chronic illness.

This movement was started by Kirsten Schultz of Not Standing Still’s Disease as a way to bring to light Quality of Life issues affecting those of us living with chronic illnesses.

About Kirsten

[pic of Kirsten, hands on her head as thought she wants to pull out her hair; she is somewhere between screaming and laughing, and only visible from the chest up; she has on black jeans, a gray tee shirt with white text "Let's talk about sex - Vibrant"; her hair is reddish-purpleish]
Kirsten | genderfluid pansexual | pronouns: she/her
Kirsten has been collecting chronic illnesses since the ripe age of five. In 1993, she was diagnosed with Asthma and had her first flare-up of Systemic Juvenile Idiopathic Arthritis. Since that time, she has added on fun diagnoses including Fibromyalgia, Depression, Anxiety, and Post-Traumatic Stress Disorder. The total is approaching 20 and somehow growing. Kirsten’s first blog was How to Ace Life but she started NSSD in 2009. She works with a number of organizations including the Arthritis FoundationCreaky Joints, and Joint Decisions.

An avid volunteer, she has been interested in sexuality and sexual education since high school (which is longer ago than she’d care to admit). After attending a presentation by Lucky Tomaszek of Tool Shed Toys, Kirsten realized how little was known or talked about with regards to sexuality and illness or disability. She also knew from her own journey with relationships and illness, though, that illness and disability also affect these things by affecting our relationships with ourselves and others.

Chronic Sex was born shortly thereafter.

Guests and Supporters

Mariah sits in front of a pretty nature scene complete with trees and some water in the background
Mariah | pronouns: she/her

Kirsten is lucky to have the support and friendship of fellow blogger and activist, Mariah Leach.

Mariah was diagnosed with Hashimoto’s thyroiditis at the age of 5 and rheumatoid arthritis at 25. She started her blog, From This Point. Forward. in 2008. Today, she works to empower patients and raise awareness about arthritis and other chronic illnesses. After learning firsthand the challenges of facing pregnancy and motherhood with RA, Mariah has become particularly passionate about supporting women with chronic illnesses who are or want to become mothers.

Mariah runs Mamas Facing Forward, a website with a Facebook support group, that provides a supportive community for moms (and moms-to-be!) living with chronic illnesses. She is also a part of Joint Decisions, writes for a number of RA-related sites, and tirelessly works towards improving knowledge around sex and illness.

What Does Chronic Sex Do?

We have a chat on Twitter Thursday nights at 8 pm Eastern (New York City) Time. We also have a strong social media presence. Our podcast can be found on iTunes and SoundCloud and just about everywhere you listen to your podcasts.

Kirsten has presented at a number of conferences including the Juvenile Arthritis Conference (2016), Women in Pain (2016), Medicine X (2016), University of Guelph Sexuality Conference (2017), and Woodhull Sexual Freedom Summit (2017). She has also worked with a variety of companies and organizations, such as Pfizer, Janssen, Stanford University, For Grace, Arthritis Foundation, Healthline, Health Central, and more.

We’re also starting a research wing called ORCHIDS – the Organization for Research on CHronic Illness, Disability, and Sexuality. Our team consists of patients, sex educators, researchers, nurses, and nurse practitioners – and we’re always looking to add more people.

If you’re looking to write a piece, have information featured on the website, or want to talk about the podcast, please send an email to kirsten [at] chronicsex [dot] org.

News & Articles About Chronic Sex:

Where to Catch Us Elsewhere on the Internetz:

If you’d like to work with us, please check out Kirsten’s media kit or email her at kirsten [at] chronicsex [dot] org.