Update on MedX Schedule

Hi all,

Quick update that there has been a slight change to the MedX schedule. I will NOT be presenting today (Thursday 9-15) BUT will be presenting on Sunday at 2:20 PM. This is not live-streamed but I will aim to have someone record it.

I definitely invite you to still tune into the live-feed for MedX here.



Ten Chronically Amazing People to Look Up to When You're Having a Rough Day


When we're dealing with chronic illnesses and disabilities, we face days where our pain is high and our ability to cope is low. We have different ways to deal with life when this happens, but one of the best ways to do so is to connect with some other amazingly chronically ill people.

Here are some of my favorites in no specific order:

(Left to right: Kirsten, Mariah, Keegan)
1. Mariah
Mariah is one of my favorite people ever. She is an amazing advocate working tirelessly to educate, raise awareness, and help mothers (and those trying to conceive or thinking about it) with chronic illnesses.

She writes at RheumatoidArthritis.Net and works with Joint Decisions in addition to helping out here at Chronic Sex.


(Left to right: Kirsten and Kenzie)
2. Kenzie
What can I say about Kenzie?

She works so hard to thrive despite multiple illnesses. She is raw and vulnerable in a way that very few can be. She has the cutest sense of style, a passion for mental health, and the most giving and loving heart I have ever seen. She's also pretty much the bestest friend ever.

She works with Joint Decisions as well.

(Left to right: Leslie, Britt, Rheumatoid Arthritis Guy, Kirsten)
3. Rheumatoid Arthritis Guy
Through RA Guy's writing on his site, Creaky Joints, Joint Decisions, and his foundation, he both raises awareness and gives hope to others living with types of arthritis. He brings in a much-needed male voice to the patient advocacy community.

One of the reasons RA Guy is so admirable, though, is that he knows when to step back and do more self-care stuff. It's amazing how someone can do so much and still be so focused on their own needs.

4. Leslie
Leslie works hard at her day job helping patients in the healthcare community and does it after-hours, too! She was one of the first bloggers with RA that I found. At the time, she was an amazing inspiration to me as she was in graduate school while dealing with her health issues - and I was incredibly concerned about even finishing college.

She writes for RheumatoidArthritis.Net, Health Central, Creaky Joints, and works with Joint Decisions.

5. Britt 
While Britt (Hurt Blogger) has been a patient advocate and activist for years, she recently began working for the Arthritis National Research Foundation.

She also writes for Creaky Joints, Health Central, and works with Joint Decisions.


6. Abby
Abby is an amazing writer and health activist. She started a movement called Ask Me About My Uterus in order to raise awareness and openly discuss reproductive health, fertility, and more. It took forever for her endometriosis to be diagnosed. As a result, she has been incredibly frank and open about talking about these issues.

She's basically who I want to be when I grow up.

You can find Abby on Medium, Romper, and on Facebook.


7. Jessica
Jessica works tirelessly to raise awareness of both physical and mental health issues. One of my favorite things about her is that Jessica focuses also on how to look good while ill, something that can definitely help to boost our self-worth. She's also a great proponent of self-care.

You can find her at her site and Huffington Post.

(Left to right: Kirsten & Kristin)
8. Kristin 
Kristin is not only a social media expert but an amazing health activist. She focuses heavily on patient engagement/experience and how to incorporate digital technologies in ways that improve the former.

She's also basically my twin.

You can find her at her site and Tumblr.


9. Natalie
Natalie lives with a rare neurological disorder called Moebius Syndrome as well as additional illnesses. She writes about life, her amazingly adorable service dog Cassius, calling out ableism, and loving Hamilton.

Make sure to check out her site and her Facebook page.


10. Dawn
Dawn is the creator of the one-and-only Spoonie Chat. She's also an amazing activist who focuses not only on chronic illness and disability rights but also on racism, socioeconomic disparities, and political issues.

Make sure to check out Spoonie Chat's Facebook, Dawn's Twitter, and Tumblr.


Who are some of your favorite chronically amazing peeps?







Dreaming of California


Hi, lovebugs!

I'm excited to share that you can tune into two places coming up to hear about the upcoming For Grace conference that I am a part of - and to hear me talk a little more about my role in it!

On Sunday, September 11, at 4 pm Pacific Time, you can tune into KPFK to hear me and others on Access Unlimited. If you missed it, please check out their archives.

You can also tune into Change Is In the Air with Nicole Smith on 740 AM (KBRITE) at 8 PM Pacific Time on Monday, September 12. (I'm pretty sure that's the date, though it may be the following Monday).

If you want to check out my presentation on Chronic Sex at Medicine X, sign up to live-stream it here. We haven't been given a schedule for the day, yet, but I'm speaking on Thursday, September 15, at the Health Care Innovation (HCI) event.

You can also live-stream For Grace.

With all that said... Things will be a little quiet around here until the end of September between attending Medicine X at Stanford and For Grace in Los Angeles a week later. Because of the busy conference month and traveling, we won't be having chat until the first week of October.

The bonus of putting chat off a little bit is that I have several episodes of the podcast recorded and just waiting for me to mix and edit, so I'll be able to dedicate more time to that. A giveaway is also coming soon - stay tuned for details!

Feel free to utilize the #chronicsex tag on Twitter to share any meaningful stories or information you'd like others to see or tag us on whatever social media you use if you'd like things shared on a wider basis. Our social media pages will still be actively posting information, providing support, and sharing about traveling, though, so don't be a stranger!

Not sure where to find us?
Facebook
Twitter
Instagram
Pinterest
Medium

You can also always reach me at kirsten@chronicsex.org, too.

PS we now have a Zazzle store! Please note that you have to set the content filter to moderate because, shocker, the word 'sex' can't be a G-rated term. Whoops!





No Chat September 1, 2016

Hi, friends!

We won't be having our chat tonight because the Disability Visibility Project is hosting a chat called #CripTrek. This chat will help us discuss disability representation in Star Trek.


#CripTrek happens at our normal chat time, 7 pm Eastern/6 Central/5 Mountain/4 Pacific, over on Twitter. Click here to be taken to the live feed where you can participate in the chat using the tags #CripTrek and #StarTrekDiscovery.

For questions, visit the Disability Visibility Project site.

If you're interested in more information on disability in Star Trek, the Women at Warp podcast had a great episode on both disability and ableism in the Trekkie universe. Definitely check them out!

Live long and prosper, friends!




SURVEY!

Peeps!

I'm conducting a study for Chronic Sex since, you know, I have to present at Stanford soon.

Yeah, the nerves are hitting.

Can you help me out and fill out the anonymous Survey Monkey here?

I love you bunches!


Chat Questions for August 25, 2016

Tonight, we're talking about finding and using our voice with loved ones.


Q1: Please introduce yourself in a way you’re comfortable sharing

Tonight, we’re going to talk about finding our voice in any relationship. Keep in mind that when I say ‘loved ones’ that can mean whatever it needs to for you - partners, family, friends, etc.

Q2: Do you feel like you can vocalize needs, wants, and concerns with loved ones?

Q3: Do you feel supported in regards to your health, your self-esteem, and the like by your loved ones?

Q4: When a loved one makes a judgmental or hurtful comment, are you able to stand up for yourself?

Q5: Do you have any tips for how to deal with judgmental comments or not let them get to you?

Q6: What is your favorite thing about the changing of seasons coming up?



Movies That Make Us Feel Good

Many things in our lives can have an effect on or influence how we regard ourselves - our relationships, societal expectations, and the media we consume.

Today, let's explore some of our favorite feel-good movies.



Tasha says something about singing as a super villain is empowering.


Netty wants her own Baymax to take care of her, and I do, too!


Erik says it's the perfect distraction from worries.


Kit says this is because of its innocent hopefulness.

Shaunia says this is due to how hilarious it is.


Chelsea says that she loves how the movie acknowledges that everyone has particular quirks, and that love and friendship are all about finding the people who fit your quirks. She also loves how the good deeds evolved.



Julie suggested this and I totally agree!


What are some of your favorite feel-good movies?