Have you had gender-affirming genital surgery? you can improve patient outcomes today!

Gender COS

Have you ever wondered how researchers, providers, and patients figure out how to measure success?

In some organizations, this requires researching what’s already been pulled together, like conducting a review of published research and journal articles.

Even if they do that, some groups also come together to create what’s known as a Core Outcome Set or COS.

A group is working to come up with a COS for genital surgery. It is vital that transgender and gender diverse folks are a part of this research —otherwise, it won’t encompass the right outcomes.

Interested? You can participate if:

  • You are transgender and/or gender diverse and have undergone genital gender surgery at least 3 months ago & you can read and understand English, Spanish or Dutch AND you are of legal age to undergo genital gender surgery in country of received surgery
  • You are a surgeon specialized in genital gender surgery (plastic surgeons, general surgeons, urologists, gynecologists)
  • You are another type of professional in gender healthcare, related to gender surgery (such as psychologists, endocrinologists, physiotherapists, sexologists, physician assistants, nurses, psychiatrists)
  • OR/AND Authors who have published at least 5 articles on research into genital gender surgery and who have also worked in gender care.

Learn more here

Please note that I am not affiliated with this group. I’ve worked on several COS for other research groups, such as OMERACT, though. So, if you have questions about the general COS process, I’m happy to chat!

Experiences of Conversion Practice by Race, Ethnicity, and Gender

The following is a press release issued by The Pride Study on Wednesday, March 13, 2024:

Official Title

Inequities in Conversion Practice Exposure at the Intersection of Ethnoracial and Gender Identities

Community Title

Experiences of Conversion Practice by Race, Ethnicity, and Gender

What Did We Do?

Conversion practices refer to organized attempts to change the sexual orientation and/or gender identity of people who are LGBTQIA+. Some examples include religious rituals and therapy intended to cause a person to associate negative thoughts with being LGBTQIA+. We looked at experiences of conversion practice in The PRIDE Study’s Lifetime Health and Experiences Questionnaire from 2019-2021 among LGTBQIA+ people. We asked participants if they had any conversion practice experiences in their lifetime, the age when they first experienced conversion practice, and the age when they last experienced conversion practice. We then looked at how experiences of conversion practice differed by race, ethnicity, and gender.

What Was New, Innovative, or Notable? 

This is one of the first studies that looked at how experiences of conversion practice differ by race, ethnicity, and gender. We considered how different identities experience power and oppression and how this may have shaped the experiences of conversion practice for different LGBTQIA+ groups.

What Did We Learn? 

There were 9,274 LGBTQIA+ participants in the study. Of them, 5.7% of LGBTQIA+ participants reported any experiences with conversion practice in their life. On average, participants were 18 years old when they first experienced conversion practice and 21 years old when they last experienced it. This resulted in an average of 3 years between their first and last experience with conversion practice. A higher percentage of transgender and nonbinary participants reported conversion practice experiences, especially participants who are American Indian or Alaska Native and/or Middle Eastern or North African.

What Does This Mean for Our Communities? 

Systems of power and oppression may likely shape differences in conversion practice experiences across LGTBQIA+ groups. This may be important for creating federal and local policies that ban conversion practice to protect LGBTQIA+ groups and reduce the harmful effects of such practices, especially for communities who may be affected the most.

What’s Next? 

We plan to look at how different experiences of conversion practice affect mental health. This involves understanding how practices targeting sexual orientation, gender identity, or both can impact mental health differently for LGBTQIA+ individuals.

Citation

Tran NK, Lett E, Flentje A, Ingram S, Lubensky ME, Dastur Z, Obedin-Maliver J, Lunn MR. Inequities in Conversion Practice Exposure at the Intersection of Ethnoracial and Gender Identities. Am J Public Health. 2024, March 13; 114 (4): 424-434. doi: https://doi.org/10.2105/AJPH.2024.307580

2022 US Trans Survey Early Insights

The following is from an email sent out by the National Center for Transgender Equity on Feb. 7, 2024:

We know you’ve been waiting, and now the day is finally here! The National Center for Transgender Equality is proud to announce the release of the first report from the 2022 U.S. Trans Survey – the Early Insights report!

A record number of transgender people took the 2022 survey – 92,329 to be exact. That’s over three times the number of respondents of the last survey in 2015. We appreciate every one of you who took or shared the survey, and now we’re finally able to share the first of many reports to be released.

The lessons from the report are clear: trans people in the survey said that living as their authentic selves made them more satisfied with their lives and that they have sources of support, yet still face many challenges in areas like accessing health care and accurate IDs.

Here are a just a few highlights from the Early Insights report:

Trans people in the survey reported greater life satisfaction after transitioning. Nearly all respondents (94%) who lived at least some of the time in a different gender than the one they were assigned at birth (“gender transition”) reported that they were either “a lot more satisfied” (79%) or “a little more satisfied” (15%) with their life.

Discriminatory policies cause real harm. Nearly half (47%) of respondents had thought about moving to another state because their state government considered or passed laws that target transgender people for unequal treatment (such as banning access to bathrooms, health care, or sports), and 5% of respondents had actually moved out of state because of such state action.

Without question, misinformation and a lack of understanding is underpinning the escalating legislative attacks on our community. But with the 2022 USTS, the largest survey ever conducted on the experiences of transgender and nonbinary people in the country, we are once again combatting that misinformation with hard data about trans lives.

Check out the Early Insights report at ustranssurvey.org. We made major changes to the site to make it easier to share the data with PDF and web versions of the report, including interactive charts. You can also view the full website en español.

Special thanks to our partners, the National Black Trans Advocacy Coalition, the TransLatin@ Coalition, and the National Queer Asian Pacific Islander Alliance, for making this survey possible. And to you, for being part of the NCTE community – we couldn’t have done this without you.

With gratitude,
Rodrigo Heng-Lehtinen
(he/him)
Executive Director

May be a graphic of text that says 'CWU Central Washington University Do you identify as having a visible disability and age 18 to 64? Do you have about 10 minutes to complete our anonymous online survey? My research partner and I are studying how media relates to self-esteem within the disability community, as a part of our master's program at Central Washington University. We would greatly appreciate your time! Please share our survey with others in the disability community! Survey linked below!'

Self-Esteem, Media Representation, and Disability

Research: Hello. We are graduate students in the Child Development and Family Science program at Central Washington University. As a part of our Research Methods course, we are conducting a survey on self-esteem within the disability community. We would appreciate you taking a few minutes to complete these questions.

Purpose: This research is examining the relationship of media representation and self-esteem of people with visible, physical disabilities (PWVPD)]. This knowledge can help individuals within the media provide more accurate representation of the disability community.

Procedure: This survey should only take between 5 and 10 minutes to complete, and is completely online.

Risks/Benefits: All of the questions are self-report and assess your own opinions and experience. There are limited anticipated risks. However, some of the questions ask about your disability and self-esteem and may cause discomfort or negative feelings. You may stop participating at any time if you feel uncomfortable, and there are resources provided at the end of the survey.

Confidentiality: All of the information you provide will be anonymous. Reasonable and appropriate safeguards have been used in the creation of the web-based survey to maximize the security of your responses; however, when using technology, it is never possible to guarantee complete privacy. No efforts, however, will be made to tie any responses provided to you personally, and no identifying information will be requested.

Voluntary: Your participation in this survey is completely voluntary. You may elect to participate, and if you chose to begin, you may skip any question that you do not feel like answering or terminate your participation at any time. Declining to participate will in no way affect your relationship with Central Washington University, or with the researchers.

Want to take this survey? Click here.

A genderqueer person looking at their phone - Active Social Media Use and Health in the LGBTQIA+ Community

Active Social Media Use and Health in the LGBTQIA+ Community

The following is a press release issued by The Pride Study on Thursday, January 4, 2023:

Official Title

Active social media use and health indicators among sexual and gender minority adults

Community Title

Active Social Media Use and Health in the LGBTQIA+ Community

What Did We Do?

We looked at data from The PRIDE Study 2017 Annual Questionnaire around active social media use and health. To measure active social media use, we considered how participants rated their own use of social networking sites as active or passive and their frequency of commenting on friends’ posts or interacting with others. We examined whether people with more active social media use had better or worse health.

What Was New, Innovative, or Notable?

This was one of the first studies to measure how much LGBTQIA+ people use social media actively, not just how much time they spend on social media. Using social media actively might have different effects than just browsing.

What Did We Learn?

Individuals with more active social media use were more likely to feel depressed, smoke cigarettes, not sleep enough, and not get enough physical activity, compared to individuals with less active social media use.

What Does This Mean for Our Communities? 

More active social media usage may play a role in experiencing poor health. While social media usage may also positively affect our health in other ways, being mindful of our social media use may be good for our health.

What’s Next? 

We don’t know whether more active use of social media worsens health, or whether people with poorer health use social media more actively. We want to survey LGBTQIA+ individuals over a longer period of time to examine this relationship more closely.

Action Steps

See http://www.pridestudy.org/study for more information and to share this study with your friends and family.

If you are interested in conducting research related to LGBTQIA+ health, please learn more about collaborating with The PRIDE Study at http://pridestudy.org/collaborate.

Citation

Vogel EA, Flentje A, Lunn MR, Obedin-Maliver J, Capriotti MR, Ramo DE, Prochaska JJ. Active social media use and health indicators among sexual and gender minority adults. LGBT Health.  Vol 0 Ahead of Print. December 28, 2023. https://doi.org/10.1089/lgbt.2023.0170

View the full PDF at: https://escholarship.org/uc/item/30w4w10n

Gov. DeWine: Please Veto HB 68

Gov. DeWine: Please Veto HB 68

According to a 2022 survey, transgender adults make up just 0.51% of Ohioans. That’s roughly 46,000 adults. As of 2021, there were 11.78 million people in the state. There were approximately 8500 trans folks between the ages of 13-17 and another 12,200 aged 18-24. HB 68 would prevent the under-18 group from accessing puberty blockers (which pause puberty and are harmless), hormone replacement therapy (HRT), some types of mental healthcare, or other gender affirming healthcare. Health care professionals who provide these kinds of care could lose their licenses and be sued.

It would also affect the ability of specifically trans women and feminine people to play sports in Kindergarten through college. Earlier this spring, the Ohio Cap Journal reported that there were only six trans girls playing sports in Ohio who would be affected.

That’s right — six.

This is clearly transmisogyny, a particular form of both sexism and transphobia that work together to harm trans girls, women, and feminine folks.

Considering the six, it’s wild how much time, energy, and taxpayer money has been spent on this bill over the last couple of years. An iteration of this bill was introduced last legislative session, too, by the same person even.

DeWine previously said in 2021 that he was against sports bans, stating,

This issue is best addressed outside of government, through individual sports leagues and athletic associations, including the Ohio High School Athletic Association, who can tailor policies to meet the needs of their member athletes and member institutions.

I am (perhaps misguidedly) hopeful that he sees the absurdity in these bills. I highly encourage you to reach out, especially if you’re in Ohio, have a connection to Ohio (waves), and/or are a part of or an ally to the transgender community.

What follows is a letter I sent to Ohio Gov. Mike DeWine Thursday, December 14, 2023, in response to the state legislative bodies passing HB 68 on Wednesday. Gov. DeWine has 10 days from Wednesday to sign HB 68 into law OR veto it.

 

My Letter

I am writing to you as a concerned citizen to urgently request that you veto House Bill 68, which prevents transgender youth from receiving gender-affirming health care and participating in school sports consistent with their gender identity. This is a dangerous bill that would harm the safety and well-being of LGBTQ+ youth, not to mention healthcare providers and those in the athletic community.

I urge you to please veto this bill.

I write to you as an internationally renowned sex educator and researcher, someone who works with groups ranging from Harvard Medical School and the American College of Rheumatology to local movements and governments across the nation. I create educational content, helping people to learn about minoritized groups, which has improved how Fortune 500 companies learn about the world and how to act within it in better ways. From my time living in Wisconsin to my time here in Ohio, I have worked internationally to improve understanding of accessibility, healthcare, and the patient experience – including working with the Centers for Disease Control (CDC) to lessen the rates of preventable chronic diseases.

Above all else, I write to you as a transgender man, as someone who is wildly negatively affected both personally and professionally by transphobia. I can tell you that HB 68 will worsen the viewpoints of Ohio as a state worth moving to or attending college in.

It will increase the amount of hate a very small minority of people receive. For it to specifically target children is abhorrent.

 

A Word on Trans Youth in Sports

The anti-trans sports ban (which we saw in the last general assembly as SB 132 and HB 151) is an example of extreme government overreach and intervention. The Ohio High School Athletic Association and NCAA already have scientifically supported policies in place to ensure that sports are fair and accessible to all. These are experts who have studied this topic in-depth, connected with true experts, and deeply understand these issues.

Legislators can be experts on many things, but those introducing and supporting this bill are not experts on this topic. They have not done unbiased or true research into this; instead, many representatives and others uneducated on this topic are relying on harmful, biased, and skewed viewpoints on this matter.

All Ohio youth that want to take part in athletics belong in sports. Participation in sports is an invaluable part of students’ physical, social, and emotional well-being. Playing sports can provide student athletes with important lessons about leadership, self discipline, teamwork, success, and failure—as well as the joy and shared excitement of being part of a team. It can also positively impact their academics, making Ohio’s students competitive while also giving them strong roots in our state. Instead of celebrating and encouraging this amazing phenomenon, the anti-trans sports ban seeks to single out transgender young people for increased bullying and harassment by needlessly preventing them from participating in the sports they love.

I grew up not playing sports, as I was critically ill for much of my youth. By the time I was physically well enough to play a sport, I was an adult and really had no connections to sport itself. Living in Wisconsin at the time, I encountered a local hockey association that welcomed beginners and was heavily focused on making the space LGBTQ+ friendly. I learned more about myself and my ability to grow – both physically and emotionally – in the six months I played than I had in years prior.

With the pandemic shutting down my ability to play hockey (I’m immunocompromised), I also know what it’s like to be forced out from a space that I grew to love. It was hard to handle as an adult and, frankly, no child should ever have to go through that – especially when they’re barred from playing because of bigotry. The self-esteem impact that will have on these kids who are at pivotal points in their lives is something we cannot undo.

 

A Word on Gender Affirming Care

The anti-trans gender affirming care ban is another example of extreme government overreach. As has been repeatedly brought up, the bill is based on stigma and bias, not on science nor a genuine regard for the wellbeing of youth in Ohio.

Gender affirming care is safe, effective, and doctor-recommended medical care. This has been studied by health care providers, researchers, and many others for over 100 years, going back to the Institute for the Science of Sexuality (Institut für Sexualwissenschaft) founded in Germany in 1919. This institute helped study and pioneer health care for transgender folks, including hormones and surgery. It operated and served as a beacon internationally for acceptance and care. That is, until the Nazi regime raided the center on May 6, 1933. Soldiers and Nazi youth groups worked together to destroy research within the building, murder staff still located on site, and then burn over 20,000 books and pieces of research. A decent collection of research remained, giving us the ability to continue research and provide affirming care to the transgender community.

The state of Ohio must not penalize healthcare providers for providing good, standard, and necessary care to their patients. Furthermore, legislators with no medical knowledge must not practice medicine by pushing bills like this.

Ohio cannot push transgender healthcare back to the fear instilled in folks by the Nazi regime.

We cannot go backwards.

All Ohioans deserve access to health care, but especially health care that does not tell them they are abominations. That goes double for transgender youth. Most parents affirm their children and want them to feel at-home in their bodies – and in Ohio. These parents should not have to worry about their children’s ability to access care and treatment. They also should not have to worry if their children feel comfortable and welcome in spaces such as school or if their child may suffer a hate crime.

Children should NEVER be a political pawn.

As we’ve seen in other states that have passed similar bills — like Texas and Florida — these families will leave for more welcoming states, and Ohio will suffer for it.

I agree we must protect our children. The best way to do so is to ensure that they have access to best-practice physical and mental health treatment.

Instead, this bill directly puts already vulnerable LGBTQ+ youth at risk of losing access to vital, best-practice healthcare. We know that, without affirming healthcare, children and teens will commit suicide – and that’s not hyperbole.

As a teenager, I was happy. I was (relatively) healthy, too. When my personal hormone makeup changed and more estrogen was introduced because of puberty, I began to struggle. I experienced chronic pain – something I had before, but was definitely worsening – in addition to migraines and struggling with self-esteem and self-image far beyond what the average kid was facing.

The bubbly person who I was went away because of puberty. I became quiet, withdrawn, and experienced suicidal thoughts. I grew up in a home where I was not supported, and this exacerbated these thoughts.

It wasn’t until I started testosterone in January 2020 that I regained the contented feeling I had in my youth. And, no, it didn’t make me better at hockey – that’s a myth. What it did do was to help my chronic pain ease up and give me back my life. Prior to starting intense physical therapy, hockey, and testosterone, I could barely sit up for two hours straight without immense pain — or even passing out. I literally could not work for a few years. But after? I gained a whole new lease on life.

When I think about the years of major depression, relationship issues, suicidal thoughts, and chronic pain I endured because I did not have the option these kids have today, and then think about them getting this taken away from them?

The only word I can think of is monstrous, and it’s not a word Ohio needs to be associated with.

We can protect children and teens and allow them the ability to be who they are. It isn’t hard to do — puberty blockers (which only pause the process) and hormone replacement therapy (HRT) aren’t rocket science. But, what they do is give us a proven way to ensure that transgender children grow into healthy and happy adults.

As someone who is passionate about equity in our world but especially in state legislation, I want to offer to serve as a resource for you. If there is anything that I can do to help share information with you to better enable you to make the most educated decisions possible, please know that I am here and happy to do so.

Sending all my best to you and your family in the holiday season,
A Proud Transgender Man in Athens

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a photo in Palestine during the sunset with text overlapping - "This international day of persons with disabilities, please remember that wars are mass disabling events." // Under the text is a digital sketch drawing by Kalyn Heffernan of Ibrahim Abu Thurayeh on the front lines in Gaza. Holding high a peace sign and the Palestinian flag in a wheelchair as a double amputee with no legs. Shot and killed by Israeli soldiers at 29 yrs old after being shot losing both his legs for protesting.

Disability in Gaza

I published this on Dec 3, 2023, on my Substack newsletter.

Today is the International Day of Persons with Disabilities, a day set aside in 1992 by the United Nations to discuss the rights of disabled people. In 2006, they put out the Convention on the Rights of Persons with Disabilities — a document that requires countries to take care of and pay attention to how their disabled citizens are living in addition to other requirements.

Israel signed onto the Convention in 2007, ratifying it in 2012. Their status as occupiers in Palestine means this applies to Palestinians, too, and that Israel is responsible for ensuring the 50,000 (and growing) disabled Palestinians have all of their rights and are safe.

And yet, if that was the case, this specific newsletter wouldn’t exist.

So, let’s talk about disability in Gaza.

“The Israeli military’s major ground offensive in Gaza adds immeasurably to the serious difficulties for people with disabilities to flee, find shelter, and obtain water, food, medicine, and assistive devices they desperately need,” said Emina Ćerimović, the senior disability rights researcher at Human Rights Watch. “The United States and other Israeli allies should press Israel to take all necessary steps to protect people with disabilities and lift the blockade.”

People in Gaza lack wheelchairs, prosthetics, crutches, hearing aids, and other assistive devices — a result of the 16-year long blockade.

Even if you do have a wheelchair, how do you navigate areas of mass bombing? Once you find a safer space to exist in, how long will it be until you’re forced to move again?

How do you try to move in a world that is now even more inaccessible to you than before?

All of this, among other reasons, is why a report earlier this year found that Israel was violating the rights of disabled Palestinians.

Deaf folks cannot hear the airstrikes.

Blind folks cannot navigate the rubble or new areas easily on their own.

The hospitals, schools, and other spaces that people may previously have sheltered in are inaccessible, overfull, or being destroyed despite the destruction being a violation of international humanitarian law.

Without access to electricity and the internet, some assistive devices like CPAP machines or augmented communication devices aren’t even able to function.

Others cannot communicate with the people who can help them the most, with their cell phones out of battery or unable to connect to the internet.

And none of this even begins to approach the issue of a lack of access to regular medical care for cancer, kidney disease, and more — or how the lack of UNWRA staff and supplies means many people, like Al Madhoun, are going without medication that they need to live.

Madhoun, a 39-year-old woman, cannot access medication for high blood pressure or diabetes: “Usually, I get the medication from UNRWA, but there is no organization on the ground right now giving out medication.”

Do you know how easy it is to die without access to diabetes medication? Absurdly so.

Madhoun also shared that she doesn’t “have people here whom I know, I cannot access water or food and I don’t feel safe.”

Not to mention how disease is running through the area rampantly. An upper respiratory infection that sound a lot like COVID-19 is among them. Bisan Owda, a 24-year old filmmaker, is just one person who is incredibly ill and struggling with their health. She is also one of the few people who has done the most to share about what’s going on every day in Gaza who is still alive.

Some of the URI-like symptoms could also be from the toxic materials used in building construction that have been vaporized and breathed in by folks of all ages. We know these materials cause a ton of health issues, including lung disease and cancer, because of September 11th, 2001.

The lack of access to food, water, proper toilets, disease-free zones, and more is all leading to a high death toll for Palestinians — and especially disabled Palestinians.

One statistic that’s been heavily shared is that half of Gazans are children. This is true, but have you stopped to consider why? Jesse does, in this piece on what disability justice means in Gaza.

And, as Alice Wong highlights in her recent piece “Why Palestinian Liberation Is Disability Justice

I’m no expert but I know what it means to be dehumanized, rendered disposable, and oppressed. I know that all people deserve freedom. I know that genocide is a mass disabling event and a form of eugenics.

All of this is not new, but may be new to some of you. And that’s okay.

But, as a sign of how not-new it is, consider that for some this is their fifth war — and they’re not even that old.

This siege hasn’t been just 55+ days. It’s been decades of increasingly horrific actions.

And it has to stop.

So, this International Day of People with Disabilities, please consider the ways disabled people are being actively harmed around you — and what you can do to stop it.

How You Can Take Action

Resources + Further Learning

If there are additional topics that you’d like to learn specifically about RE Palestine and/or disability, please reach out! I’m happy to recommend links, books, or whatever feels most accessible to help.

Three friends of varying genders taking a selfie in a park with a polaroid camera - "How people prefer to be asked about their sexual orientation and gender identity on health surveys"

How do people prefer to be asked about their sexuality & gender on health surveys?

The following is a press release issued by The Pride Study on Monday, November 13, 2023:

Official Title

Asking sexual orientation and gender identity on health surveys: Findings from cognitive interviews in the United States across sexual orientations and genders

Community Title

How people prefer to be asked about their sexual orientation and gender identity on health surveys

What Did We Do?

We interviewed 44 diverse participants about how they prefer to be asked about sexual orientation and gender identity on health surveys. Participants included 14 cisgender heterosexual people and 30 LGBTQIA+ people and ranged in age from 18-82. Also, 64% of participants indicated that their race or ethnicity was either: Asian; Black, African American, or African; Hispanic, Latino, or Spanish; or had two or more races/ethnicities. Interviews were 60 to 90 minutes and included giving feedback on various versions of survey questions.

Note: Participants for this study were not recruited from The PRIDE Study. However, this study was the first part of a series that later included participants from The PRIDE Study and was inspired by The PRIDE Study participants.

What Was New, Innovative, or Notable? 

This was one of the first studies that explored how both cisgender heterosexual people and LGBTQIA+ people want to be asked about sexual orientation and gender identity on health surveys and how these groups compare. We had a diverse group of participants by age, sexual orientation and gender identity, race and ethnicity, and from rural, urban, and suburban settings across the U.S.

What Did We Learn?

We identified four major themes that are important to consider when asking about sexual orientation and gender identity: 1) purpose for asking, 2) context of information collection, 3) distrust of the government, and 4) fear. While many participants were open to sharing sexual orientation and gender identity information on a federal health survey, all participants questioned the survey’s purpose and expressed distrust of the government. However, only LGBTQIA+ participants said they might change their answers depending on the survey context. Many said they would be more willing to share this information in a personal medical context or for a local community survey rather than a federal health survey. Further, only LGBTQIA+ participants expressed fear for their safety when sharing this information.

What Does This Mean for Our Communities? 

When taking a federal health survey, some LGBTQIA+ people may have different reasons for being fearful compared to cisgender heterosexual people. Additionally, there may be common concerns across LGBTQIA+ and cisgender heterosexual people about sharing sexual orientation and gender identity information on health surveys. Therefore, taking a ‘one-size-fits-all’ approach to asking about sexual orientation and gender identity on health surveys may not be ideal.

What’s Next? 

Additional research is needed to further explore how LGBTQIA+ people feel about sharing sexual orientation and gender identity information on surveys. Research should look at the reasons why people may change their answers in different survey contexts or not answer these questions at all.

Action Steps

See http://www.pridestudy.org/study for more information and to share this study with your friends and family.

If you are interested in conducting research related to LGBTQIA+ health, please learn more about collaborating with The PRIDE Study at http://pridestudy.org/collaborate.

Citation

Pho A.T., Bates N., Snow A., Zhang A., Logan R., Dastur Z., Lubensky M.E., Flentje A., Lunn M.R. & Obedin-Maliver J. Asking sexual orientation and gender identity on health surveys: Findings from cognitive interviews in the United States across sexual orientations and genders. SSM – Qualitative Research in Health. 2023 September 29; doi: https://doi.org/10.1016/j.ssmqr.2023.100344.

Type 1

Type 1

A few years ago, I came across Noah Averbach-Katz in Star Trek: Discovery. He, along with his wife Mary Wiseman and their friend Anthony Rapp, play some of my favorite characters — and are some of my favorite actors.

Yesterday, they released a short film they’ve been working on for a while. This is Anthony’s directorial debut and a story written by Noah about trying to seek out Type 1 Diabetes supplies at the end of the world.

Noah, who has T1D, does so much to raise awareness of the scary situations that many of us who rely on daily medication face — the shortages, the emotions, and rationing to stay alive.

I’m especially happy to see that T1International supplied support. Backing this project is one of the coolest things I’ve ever had the opportunity to do, too, and I’m so grateful for how it turned out.

You can read the Playbill article about the short film — and watch it below!

Posted in T1D
Testosterone, Sexual Health, and Pain During Sex among Transgender Men, Nonbinary, and Gender Diverse People | photo of a nonbinary person injection testosterone into their thigh (from gender spectrum)

Testosterone, Sexual Health, and Pain During Sex among Transgender Men, Nonbinary, and Gender Diverse People

The following is research that came out earlier this month (September, 2023) from the Pride Study:

What Did We Do?

We looked at sexual health experiences data from The PRIDE Study’s Annual Questionnaires from 2019-2021 provided by transgender men, nonbinary, and gender diverse people who were assigned female sex at birth (AFAB). We also looked at how these sexual health experiences were different or similar among people who were currently using testosterone and those who were not.

What Was New, Innovative, or Notable? 

Our study is one of the largest to look at the relationship between testosterone use, sexual health, and experiences of genital pain during sex among transgender men, nonbinary, and gender expansive people AFAB.

What Did We Learn? 

There were 1,219 participants in this study. 49% of participants were using testosterone and 42% had never used testosterone. Many (65%) reported having any genital pain during sex in the past 30 days (from when they completed the survey). Compared to people who never used testosterone, individuals who were using testosterone had a higher interest in sexual activity and a higher ability to orgasm. People who were using testosterone were also more likely to report genital pain during sex. We did not see a relationship between current testosterone use and satisfaction with sex life, ability for genitals to produce their own lubrication, or orgasm pleasure.

What Does This Mean for Our Communities? 

Testosterone usage for the purpose of affirming one’s gender can be associated with both positive and negative sexual health experiences. Testosterone likely impacts sexual health experiences in complex ways. For example, testosterone may play a role in genital pain during sex for some individuals. At the same time, testosterone may play a role in increased gender affirmation and improved mental health that may be related to more positive sexual experiences.

It is important that a high percentage of participants reported experiencing genital pain during sex because it can have an impact on their well-being and quality of life. However, there are not any treatments for genital pain during sex that have been evaluated specifically for transgender men or nonbinary and gender diverse people AFAB.

What’s Next? 

Our long-term goal is to identify effective and acceptable ways to treat or prevent genital pain during sex among transgender, nonbinary, and gender diverse people and to make treatments accessible. Future studies will focus on: learning more about people’s preferences for potential treatments, the ways that people using testosterone address genital pain symptoms, and what they find to be most effective. Lastly, we plan to look at how genital pain during sex impacts the overall quality of life, well-being, and relationships for transgender men, nonbinary, and gender diverse people AFAB.

Action Steps: 

See http://www.pridestudy.org/study for more information and to share this study with your friends and family.

If you are interested in conducting research related to LGBTQIA+ health, please learn more about collaborating with The PRIDE Study at http://pridestudy.org/collaborate.

Citation:

Tordoff DM, Lunn MR, Chen B, Flentje A, Dastur Z, Lubensky ME, Capriotti M, Obedin-Maliver J. Testosterone Use and Sexual Function among Transgender Men and Gender Diverse People Assigned Female at Birth. American Journal of Obstetrics & Gynecology. 2023 September 9; doi: https://doi.org/10.1016/j.ajog.2023.08.035 (article will be live in the near future)

View the full PDF at: https://escholarship.org/uc/item/6bz2x0j6