Have you had gender-affirming genital surgery? you can improve patient outcomes today!

Gender COS

Have you ever wondered how researchers, providers, and patients figure out how to measure success?

In some organizations, this requires researching what’s already been pulled together, like conducting a review of published research and journal articles.

Even if they do that, some groups also come together to create what’s known as a Core Outcome Set or COS.

A group is working to come up with a COS for genital surgery. It is vital that transgender and gender diverse folks are a part of this research —otherwise, it won’t encompass the right outcomes.

Interested? You can participate if:

  • You are transgender and/or gender diverse and have undergone genital gender surgery at least 3 months ago & you can read and understand English, Spanish or Dutch AND you are of legal age to undergo genital gender surgery in country of received surgery
  • You are a surgeon specialized in genital gender surgery (plastic surgeons, general surgeons, urologists, gynecologists)
  • You are another type of professional in gender healthcare, related to gender surgery (such as psychologists, endocrinologists, physiotherapists, sexologists, physician assistants, nurses, psychiatrists)
  • OR/AND Authors who have published at least 5 articles on research into genital gender surgery and who have also worked in gender care.

Learn more here

Please note that I am not affiliated with this group. I’ve worked on several COS for other research groups, such as OMERACT, though. So, if you have questions about the general COS process, I’m happy to chat!

Photo used courtesy of Gender Spectrum

May be a graphic of text that says 'CWU Central Washington University Do you identify as having a visible disability and age 18 to 64? Do you have about 10 minutes to complete our anonymous online survey? My research partner and I are studying how media relates to self-esteem within the disability community, as a part of our master's program at Central Washington University. We would greatly appreciate your time! Please share our survey with others in the disability community! Survey linked below!'

Self-Esteem, Media Representation, and Disability

Research: Hello. We are graduate students in the Child Development and Family Science program at Central Washington University. As a part of our Research Methods course, we are conducting a survey on self-esteem within the disability community. We would appreciate you taking a few minutes to complete these questions.

Purpose: This research is examining the relationship of media representation and self-esteem of people with visible, physical disabilities (PWVPD)]. This knowledge can help individuals within the media provide more accurate representation of the disability community.

Procedure: This survey should only take between 5 and 10 minutes to complete, and is completely online.

Risks/Benefits: All of the questions are self-report and assess your own opinions and experience. There are limited anticipated risks. However, some of the questions ask about your disability and self-esteem and may cause discomfort or negative feelings. You may stop participating at any time if you feel uncomfortable, and there are resources provided at the end of the survey.

Confidentiality: All of the information you provide will be anonymous. Reasonable and appropriate safeguards have been used in the creation of the web-based survey to maximize the security of your responses; however, when using technology, it is never possible to guarantee complete privacy. No efforts, however, will be made to tie any responses provided to you personally, and no identifying information will be requested.

Voluntary: Your participation in this survey is completely voluntary. You may elect to participate, and if you chose to begin, you may skip any question that you do not feel like answering or terminate your participation at any time. Declining to participate will in no way affect your relationship with Central Washington University, or with the researchers.

Want to take this survey? Click here.

Survey: Experiences with Religion for LGBTQ+ Individuals

UCONN
UNIVERSITY OF CONNECTICUT
PARTICIPANTS
NEEDED
I'm recruiting LGBTQ+ young adults for my
dissertation on religious experiences. If you WERE
RAISED in a religion that does not support LGBTQ+
people, please complete the screener to see if you
qualify.
Qualified respondents:
• Will be invited to a virtual 45 to
60 minute interview
• Receive a $40 Amazon gift card
Click the link below or scan the QR
code to learn more and complete
the screener:
https://bit.ly/48qAWK4
IRB:
Contact: veronica.hanna-walker@uconn.edu

What is the purpose of this study?
The purpose of the study is to better understand (1) LGBTQ+ young adults’ decisions about continuing their association with the religion from their childhood; (2) these adults’ thoughts on what would have helped them in deciding whether to continuing associating with this religion; (3) how their family influenced and/or helped with their decisions about their childhood religion.

What will you have to do if you agree to be in the study?
If you agree to participate, you will be asked to complete an online questionnaire. The questionnaire consists of questions about your age, gender identity, sexual orientation, race/ethnicity, religion, as well as your email address and phone number so we may contact you to invite you to participate in the study if you qualify. This survey will take 5 to 10 minutes.

If you are eligible to participate in the study, you will be invited to be interviewed within 7 to 10 days of taking this survey.

If you’d like to participate, click here.

Disabled & Deaf Trans People’s Survey (DTPS)

Disabled & Deaf Trans People’s Survey (DTPS)

The following is from the Transgender Law Center’s Disability Justice Project:

The Disability Project with floral decorations

Ableism is woven into our everyday systems yet the knowledge of disabled and Deaf trans people has often been overlooked in research, leadership development, and philanthropy. Collecting stories and data will create opportunities for our leadership and momentum to tell our collective story and fight for our rights and needs.

The DTPS is a survey created by and for disabled and Deaf trans people. This survey gives disabled and Deaf trans people a tool to advocate for ourselves, to organize, and to transform movement spaces.

Please participate in the survey by visiting the survey website!

Are you disabled / chronically ill and pregnant?

The follow is a call for research participants to test a tool. I’m not involved, but it popped up on my radar, but I’m sharing here.

Brandeis University, the Cincinnati Children’s Hospital Medical Center, and others have worked together to develop a new tool – an Accessible Pregnancy Action Plan. This tool would help pregnant people with disabilities think about what they need during pregnancy, during birth, and after having their baby.

They are looking for people between 12 and 36 weeks along in their pregnancies who have disabilities / chronic illnesses and also use English or American Sign Language (ASL) to communicate.

Participants will work on their Action Plan with a peer facilitator, who is also a parent with a disability. These meetings will take place over Zoom. There will be between 2 and 4 meetings.

Most participants will complete the intervention in two sessions. They will be paid $50 per session. Participants who complete the program will also be compensated an additional $50.

Learn more about the study and take the screener here.

screener poster (has all the same information as in the Brandeis link)

Survey: Talking to HCPs and Access 2023

Survey: Talking to HCPs and Access

Back in 2016, I collected some initial information about how people felt they could talk to healthcare providers (HCPs) about sexual health and function, sexual orientation, and gender. Then, in the fall of 2019, I conducted a more extensive survey. I’m still working on the results of that survey.

With the changes occurring in the last few years, though, I wanted to collect information again. Allow me to introduce you to the new 2023 survey.

This survey asks the same questions as before, such as “Have any of your physicians or other healthcare providers talked to you about sex or sexual issues?” It also has a section about how recent anti-equity efforts, such as rampant transphobia, have affected these conversations.

This survey is open as of May 28, 2023, and will close at the end of the day on July 31, 2023. It is only open to US residents aged 18 and up.

Take the survey here.

"The 2023 Gender Census is Open" next to illustrations of happy and thriving transgender and nonbinary people

Gender Census 2023 Now Open!

The 10th annual international gender census, collecting information about the language we use to refer to ourselves and each other, is now open until 9th May 2023. This is a short and easy survey.

What is the Gender Census?

The Gender Census is an annual survey that collects information about the language used by people whose genders are not adequately described, expressed or encompassed by the restrictive gender binary. It has taken place every year since 2015.

The language we ask about includes identity words, honorific titles, and pronouns.

Who can take this survey?

The gender binary is a societal model that classifies all humans into one of two categories:

  • Woman/girl – always, solely and completely
  • Man/boy – always, solely and completely

If you feel like that doesn’t fit your experience of yourself and your own gender in some way, you are invited to participate. This includes, but is definitely not limited to:

  • people whose genders change over time.
  • people whose genders fluctuate in intensity.
  • people who experience more than one gender at a time.
  • people who don’t experience gender at all.
  • people whose gender is neither male/man nor female/woman.

We also welcome anyone who:

  • rejects gender altogether.
  • feels like they’re outside of gender.
  • feels like they transcend or move beyond gender or the gender binary.
  • doesn’t really understand gender as it applies to them.
  • is questioning whether their flavour of trans might be binary or nonbinary.

It’s completely up to you whether you feel you fit any of these. This survey leans on the side of inclusive.

You can find data from previous years’ here. This is research from within our community and responses are anonymous.

How do I participate?

Click here to take the survey. It will close on or around May 9th.

Note: language in this post is taken from the Gender Census site.

Calling nonbinary folks with nonbinary partners!! Have you heard of the LNLH study? This study seeks to gain insight into how nonbinary partners who live together share household labor (tasks such as cooking, cleaning, taking out the trash, etc.). To be eligible to participate, you must have a nonbinary identity, and currently living with one romantic partner, or multiple romantic partners, who has/have a nonbinary identity. Zoom interviews typically last around one hour. Interviewees will receive $50 Etsy e-gift cards as compensation for their time. If interested, please scan the QR code or visit https://bit.ly/LNLHstudy

Calling nonbinary folks with nonbinary partners!

Have you heard of the LNLH study? This study seeks to gain insight into how nonbinary partners who live together share household labor (tasks such as cooking, cleaning, taking out the trash, etc.).

To be eligible to participate, you must have a nonbinary identity, and currently living with one romantic partner, or multiple romantic partners, who has/have a nonbinary identity.

Zoom interviews typically last around one hour. Interviewees will receive $50 Etsy e-gift cards as compensation for their time.

This is not limited to U.S. partipants only, either. If you’re interested and international, please check it out!

If interested, please scan the QR code in the photo or visit https://bit.ly/LNLHstudy

Yellow graphic with megaphone. Text reads "Do you use adaptive equipment or assistive technology to get around, communicate, or complete tasks? Have you ever had trouble getting the equipment and technology you need? Have you ever struggled to get your equipment repaired or to make your equipment work better for you?" Link is https://tinyurl.com/disabilitytechjustice

Disability and Technology Policy Survey

Researchers at Purdue University are studying how disability and technology policy can change to make life better for people who use adaptive equipment and assistive technology:

We are investigating how people with disabilities in the United States qualify for, access, and maintain adaptive and assistive technologies. This study explores people’s experiences with acquiring, maintaining, and advocating for assistive and adaptive technology. We are collecting this information to inform future technology design, changes in technology policy, and to support a public information campaign, all of which we hope will improve technology access for people with disabilities in the United States. Your participation in this study will take 10-20 minutes of your time.

You are being asked to participate in this survey because you are a person with a disability who uses adaptive or assistive technology. We would like to enroll at least 250 people in this study. The survey will close if we reach 1000 responses. In total, this project will involve up to 1120 participants across multiple stakeholder groups and data collection methods.

You will be asked a series of questions about your experiences with adaptive and assistive technology. After completion of the survey, you are invited to email the researchers if you are interested in participating in longer format interviews about the same topic.

The survey will take approximately 20 minutes or less.

To participate or for more details, click here.

Research Opportunity for Folks in Recovery from Drug and Alcohol Use Disorder

Research Opportunity for Folks in Recovery from Drug and Alcohol Use Disorder

One of my friends is currently working on collecting data for his PhD. Please see below.

Aaron M. Laxton, student in the school of social work at Saint Louis University, is inviting you to participate in this research study.

The title of this study is “Examining Spatial Reasoning in Individuals Recovering from Drug and Alcohol Use Disorder”. The purpose of this study is to measure spatial reasoning among individuals who are recovering from drug and alcohol abuse. A secondary objective is to assess the effects of substance abuse and recovery on spatial reasoning.

Your participation in this study will involve participating in an online survey. The study proposes that it will take 5 minutes to complete the survey.

Participation in this study will not benefit you directly. Your participation may benefit others by expanding knowledge regarding strategies, interventions, services provision, and accessibility that enhance the overall wellbeing of international students

The risks to the participant are minimal and include loss of anonymity. To minimize this risk, the study team will not collect any identifiable information including IP addresses. Study data will only be accessible to the study team. You may experience participant distress or discomfort experienced because of answering questions on survey instruments or feel pressure to answer questions or to provide responses in assessments. This pressure may cause stress or distress. To minimize these risks, you can choose not to answer any question that makes you uncomfortable.

The results of this study may be published in scientific research journals or presented at professional conferences. However, your name and identity will not be revealed, and your record will remain anonymous. Data collection instruments will not request any personally identifiable information.

You can choose not to participate. If you decide not to participate, there will not be a penalty for you or the loss of any benefits to which you are otherwise entitled. You may withdraw from this study at any time.

If you would like to look more into this study – or complete the survey – please click here.