Category: research opportunity

Yellow graphic with megaphone. Text reads "Do you use adaptive equipment or assistive technology to get around, communicate, or complete tasks? Have you ever had trouble getting the equipment and technology you need? Have you ever struggled to get your equipment repaired or to make your equipment work better for you?" Link is https://tinyurl.com/disabilitytechjustice

Disability and Technology Policy Survey

Posted on by Grayson Schultz

Researchers at Purdue University are studying how disability and technology policy can change to make life better for people who use adaptive equipment and assistive technology:

We are investigating how people with disabilities in the United States qualify for, access, and maintain adaptive and assistive technologies. This study explores people’s experiences with acquiring, maintaining, and advocating for assistive and adaptive technology. We are collecting this information to inform future technology design, changes in technology policy, and to support a public information campaign, all of which we hope will improve technology access for people with disabilities in the United States. Your participation in this study will take 10-20 minutes of your time.

You are being asked to participate in this survey because you are a person with a disability who uses adaptive or assistive technology. We would like to enroll at least 250 people in this study. The survey will close if we reach 1000 responses. In total, this project will involve up to 1120 participants across multiple stakeholder groups and data collection methods.

You will be asked a series of questions about your experiences with adaptive and assistive technology. After completion of the survey, you are invited to email the researchers if you are interested in participating in longer format interviews about the same topic.

The survey will take approximately 20 minutes or less.

To participate or for more details, click here.

Research Opportunity for Folks in Recovery from Drug and Alcohol Use Disorder

Research Opportunity for Folks in Recovery from Drug and Alcohol Use Disorder

Posted on by Grayson Schultz

One of my friends is currently working on collecting data for his PhD. Please see below.

Aaron M. Laxton, student in the school of social work at Saint Louis University, is inviting you to participate in this research study.

The title of this study is “Examining Spatial Reasoning in Individuals Recovering from Drug and Alcohol Use Disorder”. The purpose of this study is to measure spatial reasoning among individuals who are recovering from drug and alcohol abuse. A secondary objective is to assess the effects of substance abuse and recovery on spatial reasoning.

Your participation in this study will involve participating in an online survey. The study proposes that it will take 5 minutes to complete the survey.

Participation in this study will not benefit you directly. Your participation may benefit others by expanding knowledge regarding strategies, interventions, services provision, and accessibility that enhance the overall wellbeing of international students

The risks to the participant are minimal and include loss of anonymity. To minimize this risk, the study team will not collect any identifiable information including IP addresses. Study data will only be accessible to the study team. You may experience participant distress or discomfort experienced because of answering questions on survey instruments or feel pressure to answer questions or to provide responses in assessments. This pressure may cause stress or distress. To minimize these risks, you can choose not to answer any question that makes you uncomfortable.

The results of this study may be published in scientific research journals or presented at professional conferences. However, your name and identity will not be revealed, and your record will remain anonymous. Data collection instruments will not request any personally identifiable information.

You can choose not to participate. If you decide not to participate, there will not be a penalty for you or the loss of any benefits to which you are otherwise entitled. You may withdraw from this study at any time.

If you would like to look more into this study – or complete the survey – please click here.

The U.S. Trans Survey is now open! [closed]

Posted on by Grayson Schultz

The following is from an email sent out by the U.S. Trans Survey Team @ National Center for Transgender Equality yesterday (10-19):

take the us trans survey

We’re proud to announce that the U.S. Trans Survey is now open and ready for you to take! Whether you pledged to take the survey or not, you can take the survey today!!

As trans people, we know that we’ve accomplished incredible things together as a community. Join thousands of other people folks around the country in sharing your experience to create a clear picture of what it’s like to be trans in the United States.

If you are trans and plan to take the survey, here’s what you need to know:

  • The survey is open to people of all trans identities (binary and nonbinary), ages 16 and older, living in the United States and U.S. territories, regardless of citizenship status.
  • If you pledged to take the survey, you are not obligated to take the survey. Participation is voluntary. When you click on the link to start the survey, you will be asked to consent to take the survey.
  • The U.S. Trans Survey is an anonymous survey. Your response will be kept confidential and will not be used to identify you.
  • The time required to take the survey may vary, but make sure to set aside at least 60 minutes to take the survey.
  • The survey will be available in both English and Spanish.
  • Please let your trans friends and siblings know about the survey too!

The U.S. Trans Survey is being conducted by the National Center for Transgender Equality in partnership with the National Black Trans Advocacy Coalition, TransLatin@ Coalition, and National Queer Asian Pacific Islander Alliance.

If you have any questions, please reach out at ustranssurvey@transequality.org.

Again, thank you so much for being part of this important survey. We’re excited to see the results!

Click here to take the survey now!

With love and solidarity,

The U.S. Trans Survey Team

Survey About How Social Media Increases Anti-Trans Ideals

Posted on by Grayson Schultz

the role of social media in facilitating anti-gender mobilizing and their impact on tgdi movements

The following is from the webpage on this survey:

We want to explore the impact of global anti-gender movements on trans, gender diverse (TGD) and wider LGBTQI mobilizing and rights and the role of social media in facilitating anti-gender mobilizing and discourses.

The anti-gender movement is an international movement which opposes what it refers to as gender ideology, gender theory, or genderism (Kováts, Eszter, 2016). Today, social media plays a huge role in disinformation currencies that perpetuate anti-gender mobilizing. If you’re a trans or gender diverse person, is very likely that you’ve encountered anti-gender movements. We’re creating a survey to collect data that can help us counteract these movements, and we need your help! This survey was created for people who are part of organizations or unregistered collectives working on trans, gender diverse or wider LGBQ communities and issues.

It takes about 20-30 minutes to fill out this questionnaire. You are welcome to send us your complaints or other types of feedback to research@gate.ngo. Considering the safety issues in many contexts relating to reporting on anti-gender opposition and/or being an activist or a community member, you will have the opportunity to stay anonymous. This is also available in Russian and Spanish.

If you’re interested in participating, click here.

The 2022 Gender Census is open! [closed]

Posted on by Grayson Schultz

The 2022 Gender Census is open!

This survey is open to anyone, in any country, of any age, whose experience of their gender doesn’t fit tidily into the strict binary of female/male. It seeks broad statistical data about the language we use to refer to ourselves in English, e.g. pronouns, identity words, and titles. The results will be made public for use in activism, self-advocacy, business, and academia.

Helpful information:

  • It is international and open to anyone, anywhere.
  • The survey aims to collect information about the language we use to refer to ourselves.
  • Most of the survey asks about three things: identity words, pronouns and titles.
  • There is a feedback box at the end.
  • Most people find that it takes 5 minutes or less.
  • You can read the FAQs here.

This is a volunteer-run, crowdfunded project. They don’t pay for any advertising at all, and the >44,000 responses last year were gathered entirely by word-of-mouth.

If you’re into that kind of thing, click here to take part: survey.gendercensus.com

Rites of Passage Study

Posted on by Grayson Schultz

Sharing the following opportunity as listed on my friend ink’s substack:

Rites of passage research is incredibly important to me in my journey of recovery and becoming. Through initiating to adulthood in community, to learning to truly be alone, rites of passage work has fostered an unwavering sense of knowingness and purpose into my life that I hope all young people get the privilege to experience.

We have all grown up in vastly different ways. Qualitatively, there is no one growing up story alike another.

With this, we want to know more about how you grew up.

We are building an understanding of how our generation of young people have come into age as we seek to understand its impacts on health, toward future programs.

This is an incentivized opportunity ($20 bookstore giftcard) to contribute to the advancement of rites research, as we move toward implementing ways of knowing and being that support growing up.

These questions are in-depth and may be uncomfortable. Only engage if you feel you have the time to donate your story to the cause. Otherwise, please feel free to disregard or send feedback.

Find everything you need to know here, and thank you for supporting the research.

Participate in the International Kink Health Study

Posted on by Grayson Schultz

KINK HEALTH Adventurous people deserve exceptional care. kinkhealth.org TASHRA presents an international health study and invites YOU to learn if you are eligible. Go to kinkhealth.org Do you have recurring, long-standing fantasies that focus on kink, bondage, and fetish? Our goals: • The IKHS will document the prevalence of injuries and medical complications arising from kink activities • Examine the health status of kink-involved people; and document how healthcare is utilized by kink The involved people International • Investigate how connections to kink communities Kink Health affect people's health and well-being Study (IKHS) Contact us with other questions at KinkHealth2@protonmail.com *Complete a short survey to determine your eligibility for this study at kinkhealth.org

The International Kink Health Study is now LIVE!

The International Kink Health Study (IKHS) is a research project about the physical and mental health, childhood experience, sexuality and healthcare of those around the world with recurring fantasies and practices that involve kink/BDSM/leather and fetish.

An expansion of our 2016 research survey, this study plans to invite participants to become part of a group of kink interested people from around the world. We will ask them to complete yearly surveys over a number of years. We hope that they will help us understand more about what it means to be kinky, about their health and wellbeing, their kink lives and pleasure, their relationships and roles, their injuries and their experiences of healing.

We are researchers with deep roots in the kink community and who want to make sure that this information benefits the kink community. Won’t you think about joining with us on our upcoming adventure?

Want to learn more, see if you’re eligible, or take the survey?
Pop over to the study’s website today.

Pledge to Take the 2022 US Trans Survey

Posted on by Grayson Schultz

a graphic featuring black, brown, white, pink, and blue hands - pledge to take the us trans survey

The U.S. Trans Survey (USTS) is the largest survey of trans people in the United States. The USTS documents the lives and experiences of trans people in the U.S. and U.S. territories. The last time data was collected was back in 2015. That year, nearly 28,000 people took the survey!

The USTS is the main source of data about trans people for the media, educators, policymakers, and the general public, covering health, employment, income, the criminal justice system, etc.  USTS reports have been a vital resource, including the reports on the experiences of people of color and reports by state.

It is vital that we ensure that this survey includes data about historically and continually forcibly marginalized groups, including Black and Brown folks, those in rural areas, disabled folks, and more.

So, if you are ages 16+ and are transgender, nonbinary, etc., please consider pledging to take the survey when it’s out later this year.

Pledge here

Note: By submitting this pledge form, you’ll receive email updates from the National Center for Transgender Equality (NCTE) about the survey. Pledging to take the survey does not obligate you to take the survey. Participation is voluntary. You will be asked to consent to take the survey later when the survey enrollment begins. 

Hypermobility and Sexual Function Study

Posted on by Grayson Schultz

hypermobility and sexual function study graphic

Sexual Functioning and its Impact in Relation to EDS

Researchers: Tom Virden, Ph.D. (he/him) & Brona Hagins, M.A. (she/her) at Midwestern University

In layman’s terms, this study is to assess how hypermobility/EDS may negatively impact gynecological health, sex, and relationships. Therefore, it is only open to those who were

  • assigned female at birth,
  • aged 18 years or older,
  • and who have a hypermobility disorder such as Ehlers-Danlos Syndrome (EDS).

This research study is open to those who have been diagnosed with a hypermobility spectrum disorder (which includes Ehlers-Danlos Syndrome (EDS). The purpose of this research study is to understand the gynecological impacts of hypermobility.

The questionnaire will assess gynecological concerns and their impact on individuals with hypermobility regarding avoidance, fear, relationships, sexual dysfunction, and quality of life. Quality of life will be assessed using the World Health Organization Quality of Life brief scale (WHOQOL-BREF). Sexual dysfunction will be assessed using the Female Sexual Functioning Index (FSFI).

Original questions are follow-up questions to the two included measures, such as sexual functioning’s impact on various relationships.

The study aims to assess the psychological and day-to-day impact of gynecological concerns in hypermobile individuals. Additionally, it will provide guidance as to the gynecologically-informed treatments utilized/recommended in the hypermobile population.

We’re inviting you to participate in a research study. This study consists of an online survey. You will be asked to complete a series of questions about your sexual health and gynecological functioning. This survey may be completed on any computer with internet access. You are free to skip any questions that you would prefer not to answer.

Participation is completely voluntary. If you agree to participate, you can always change your mind and withdraw. There are no negative consequences, whatever you decide.

  • If you have any questions about or do not understand something on this form, you should ask the research team for more information.
  • You can and should discuss your participation with anyone you choose, such as family or friends.
  • Do not agree to participate in this study unless the research team has answered your questions and you decide that you want to be part of this study.

Some questions may be very personal or upsetting. You can skip any questions you don’t want to answer or stop the survey entirely.

  • Online data being hacked or intercepted: This is a risk you experience any time you provide information online. We’re using a secure system to collect this data and are not collecting identifiable information, but we can’t completely eliminate this risk.
  • Breach of confidentiality: There is a chance your data could be seen by someone who shouldn’t have access to it. We’re minimizing this risk in the following ways:
    • Data is anonymous.
    • We’ll store all electronic data on REDCAP, a secure online survey server, or on a password-protected, encrypted computer when statistical analyses are conducted.

In the unlikely event that you suffer an injury or illness directly related to your participation in this research project, upon your request, Midwestern University will arrange for the provision of treatment for such injury or illness at the closest medical facility. Payment for such treatment will be your responsibility, although your commercial insurance carrier if any, may pay all or part of the medical expenses that you might incur. Midwestern University will not pay any monetary compensation for research related injury or illness or pay for treatment outside any MWU-affiliated Hospitals or Medical Centers. You are not waiving any of your legal rights by volunteering to participate in this study.

Although you will not benefit directly from participating in this study, you will make a major contribution to the information known about gynecologically related concerns impact in hypermobility. In future, others may benefit because doctors will learn about how hypermobility affects gynecological functioning.

You will not be compensated for participation.

This questionnaire should take no more than 15 minutes to complete.

We will not collect any identifying information for the research.

Where will data be stored?
On the servers for the online survey software, REDCAP.

How long will it be kept?
For the duration of the research project (estimated < 1 year).

Who can see my data?

  • We (the researchers) will have access to de-identified (no names, birthdate, address, etc.) information. This is so we can analyze the data and conduct the study.
  • We may share our findings in publications or presentations. If we do, the results will be de-identified.

This study has been reviewed and approved by the Midwestern University Institutional Review Board (AZ #5070). If you have questions about this research project and the research subjects’ rights please contact the principal investigator, Tom B. Virden III, Ph.D., at (623) 572-3868 or email at tvirde@midwestern.edu.

If you have any questions regarding the rights of being a research subject, please call the Office of Research and Sponsored Programs at 623-806-7670 or via email: AZORSP@midwestern.edu.

You can also contact Brona Hagins, MA, at bhagins67@midwestern.edu.

 

After taking this survey, I would suggest listing information on the first page in the last question about if you’re not currently experiencing sexual function issues but have in the past. There isn’t another spot to list that information later on.

 

To participate, click here.

2021 Care Rationing Survey

Posted on by Grayson Schultz

2021 Care Rationing Survey - #NoBodyIsDispoable Fat Legal Advocacy, Rights, & Education Project - Have you struggled with or delayed getting medical care during the pandemic? Are you a provider concerned about care rationing at your organization? Please take this survey.

The #NoBodyIsDisposable Coalition and the Fat Legal Advocacy, Rights, & Education Project have created a short survey to hear from people who are being denied medical care because of limited medical resources. Responses will be used to help advocate for fair medical treatment.

This survey was created to help gather the stories of folks who are having trouble getting medical care during COVID. Stories will be shared to create awareness and support advocacy. (Respondents can choose whether or not to share anonymously.)

Who should take the survey?

Please take the survey if you or someone you know had a hard time getting medical treatment during COVID due to limited medical personnel and supplies/equipment shortages and you suspect part or all of the reason you did not receive necessary care was based on discrimination including but not limited to your weight, disability, race, age, or other factors.

Take the survey if you have been delaying necessary medical care because you worry if you do get COVID that you will be deprioritized for life-saving medical treatment based on your weight, disability, race, age, or other factors.

Take the survey if you work at a health care organization and have concerns about the care rationing policy, or how it is implemented.

Link to the Survey

The survey is available in English and Spanish.

Please help spread the word. They will be reviewing answers on an ongoing basis.